Top Websites for rare disease

themighty.com

A community for people facing health challenges.

ambrygen.com

Setting the Standard for Genetic Testing

araceagainstblindness.org

Nonprofit funding sight-saving research for children

ataxia.org

Dedicated to accelerating treatments and a cure for ataxia.

emmes.com

Advancing human health with scientific rigor and integrity.

salveajulinha.com.br

Fundraising for Julinha's rare disease treatment.

premier-research.com

Helping biotech and pharma innovators bring products to mark...

ccrdp.org

Supporting child cancer and rare disease projects.

phenotips.org

Workflows for genomic medicine, designed for genetics.

zygomyco.net

Official site of the ECMM/ISHAM Working Group on Zygomycosis...

undiagnosedbutokay.com

Documenting a family's journey with a rare genetic syndrome.